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My child has amplified pain. Now what?

When your child or teen who has been struggling with chronic pain gets diagnosed with an amplified musculoskeletal pain syndrome it can be tough to know where to start. You’ve found the right place. Here you will find a wealth of information from medical professionals who are experts on the various forms of amplified musculoskeletal pain syndromes in children and adolescents. After carefully going through this site you should leave knowing:

  • What amplified pain is, what the different forms are, how the pain signals become so strong, and what the medical community believes the cause to be.
  • Other conditions that your child may need to be monitored for.
  • How some of the world’s leading children’s hospitals effectively treat children with amplified musculoskeletal pain syndromes and what treatments, according to research, should be avoided.
  • All the hospitals in the US that offer amplified pain programs.
  • How to put together a medical team for your child and get the resources and literature needed to replicate amplified pain programs in your home community.
  • How to help your child and family cope through this distressing period.
  • How to address school, trouble sleeping, abdominal symptoms, pain behaviors, other forms of chronic pain, and several other issues.

You will also find research and guides that can be printed out and taken to your child’s physician, physical therapist, psychologist, teachers, etc.

If you still have questions after going through the website, then please contact us. While we cannot give any medical advice, we can provide general information and can even arrange for professional support for the qualified health care professionals on your child’s medical team.

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Amplified musculoskeletal pain syndromes include a variety of chronic pain syndromes such as fibromyalgia, complex regional pain syndrome (CRPS)—formerly known as reflex sympathetic dystrophy (RSD), reflex neurovascular dystrophy (RND), neuropathic pain, idiopathic pain syndrome, and myofascial pain syndrome. Much of the information you will find online pertains only to adults, particularly when it comes to fibromyalgia and CRPS.

Many children with amplified pain will see several doctors over months or even years before getting a diagnosis (or getting a correct diagnosis). Since most children with amplified pain will have normal or close to normal diagnostic tests, their pain is often called idiopathic pain syndrome. The word idiopathic simply means that the cause is not known. Amplified pain is caused by a dysfunction of the autonomic nervous system and most children who are diagnosed with idiopathic pain syndrome very likely have one of the various forms of amplified pain. If you have been given the diagnosis of idiopathic pain syndrome, it would be wise to see a physician who is highly experienced with the various types of amplified pain. Additionally, many children have amplified pain in conjunction with other conditions that would not normally cause the levels of pain the child is experiencing.